{"id":1710,"date":"2015-04-15T11:22:52","date_gmt":"2015-04-15T11:22:52","guid":{"rendered":"http:\/\/www.novogreen.net\/blog\/?p=1439"},"modified":"2015-04-15T11:22:52","modified_gmt":"2015-04-15T11:22:52","slug":"novogreen-sponsoriza-a-blandine-guepin-en-su-reto-deportivo-y-solidario-en-beneficio-de-la-fundacion-enfermedades-raras","status":"publish","type":"post","link":"https:\/\/novogreen.net\/en\/novogreen-sponsoriza-a-blandine-guepin-en-su-reto-deportivo-y-solidario-en-beneficio-de-la-fundacion-enfermedades-raras\/","title":{"rendered":"Novogreen esponsoriza a Blandine Guepin en su reto deportivo y solidario en beneficio de la Fundaci\u00f3n Enfermedades Raras"},"content":{"rendered":"

\"mont-blanc-novogreen\"
\n<\/a>Blandine antigua compa\u00f1era en Novogreen<\/strong><\/em>\u00c2\u00a0ha decidido participar en un\u00c2\u00a0reto deportivo, la carrera de monta\u00f1a\u00c2\u00a0Ultra Trail du Mont-Blanc<\/a>,<\/span>\u00c2\u00a0 en solidaridad con la\u00c2\u00a0Fundaci\u00f3n de las enfermedades raras<\/span><\/a><\/span><\/p>\n

Despu\u00e9s de hablar con ella y escuchar las poderosas razones que la han llevado a dar este paso, no dudamos un momento en prestarle nuestro apoyo moral y tambi\u00e9n econ\u00f3mico por medio de nuestra\u00c2\u00a0sponsorizaci\u00f3n<\/span><\/a>\u00c2\u00a0a trav\u00e9s de\u00c2\u00a0\u00c2\u00a0la plataforma donde lleva a cabo la campa\u00f1a de crowdfunding para conseguir fondos que ir\u00e1n \u00edntegros a la Fundaci\u00f3n de las enfermedades raras.<\/a><\/span><\/p>\n

\"fondation-maladies-rares\"<\/p>\n

Blandine<\/span><\/a> participar\u00e1 a finales de agosto, con un dorsal solidario con\u00c2\u00a0el nombre de la Fondation Maladies Rares<\/span><\/a>,\u00c2\u00a0en esta carrera de 170 km en monta\u00f1a con 10000 m, que incluye pasar dos noches en plena naturaleza.
\n<\/a><\/span><\/p>\n

\"blandine\"<\/p>\n

La Fondation Maladies Rares<\/span><\/a><\/span><\/p>\n

Actualmente 7000 hay m\u00e1s de 7000 enfermedades raras censadas en el mundo., De hecho, se calcula que 3 m\u00e1s de 3 millones de personas est\u00e1n afectadas en Francia, y alrededor de 27 y 36 millones de personas en Europa, representa el 6 y 8% de la poblaci\u00f3n en su vida. 80% enfermedades raras son de origen gen\u00e9tico y el gen implicado es desconocido en 1 caso de 2. Para la mayor\u00eda de las enfermedades raras, hoy en d\u00eda, no existe un tratamiento, y a\u00fan quedan muchos retos. La Fundaci\u00f3n\u00c2\u00a0une y acelera los proyectos de investigaci\u00f3n sobre todas las enfermedades raras, contribuye a facilitar y acelerar : el conocimiento sobre enfermedades raras , el desarrollo de nuevos tratamientos, la mejora de la vida de personas enfermas. .<\/span><\/p>\n

Seg\u00fan palabras de Blandine: \u00c2\u00a0\u00abesto me parece todav\u00eda una locura, pero saber que, a trav\u00e9s de cada uno de mis pasos, mis esfuerzos, momentos de sufrimiento y felicidad, podr\u00e9 formar parte del esfuerzo que numerosas personas sostienen para la investigaci\u00f3n sobre Enfermedades Raras , me motiva mucho.\u00c2\u00a0Q<\/em>uiero aportar mi grano de arena para ayudar a que la investigaci\u00f3n avance , a\u00f1o tras a\u00f1o, y descubra como hacer para tratar las enfermedades raras que afectan al 8% de nuestra poblaci\u00f3n\u00bb<\/em><\/span><\/p>\n

Blandine nos cuenta un caso que la hizo tomar conciencia acerca de este sector minoritario de enfermos cr\u00f3nicos, y que la motiv\u00f3 a apoyarlos y a aportar . La persona clave es\u00c2\u00a0Marcos<\/strong>, al que conoci\u00f3 en una de las carreras de la Once<\/em>. Marcos empez\u00f3 como gu\u00eda para ciegos y ahora mismo corre como B2, es decir \u00c2\u00a0deportista con resto visual<\/em>. Padece de una enfermedad rara, llamada Retinitis pigmentaria<\/em> y pierde la vista progresivamente. \u00c2\u00a0Marcos, es la persona extremadamente activa y muy abierta, se dedica en cuerpo y alma a dar a conocer las enfermedades raras que por ser padecidas por un sector minoritario de la poblaci\u00f3n no tienen la oportunidad de beneficiarse de presupuestos importantes para la investigaci\u00f3n y la puesta en marcha de tratamientos eficaces. Ha creado un proyecto MU\u00c1\u2030VETE POR LOS QUE NO PUEDEN<\/span><\/a> y dentro de poco, har\u00e1 una vuelta de Catalu\u00f1a corriendo, aprovechando cada parada para presentar una de las enfermedades raras que \u00e9l conoce.\u00c2\u00a0<\/span><\/p>\n

\"ultra-trail-du-mont-blanc\"<\/p>\n

Blandine <\/span><\/a>participa en el proyecto de Marcos corriendo\u00c2\u00a0EL ULTRA-TRAIL DEL MONT BLANC<\/span><\/a>,\u00c2\u00a0\u00c2\u00a0una carrera m\u00edtica, un objetivo por su belleza y su dureza, 170 km alrededor del Mont Blanc, 10000 m y dos noches en la monta\u00f1a, sin interrupci\u00f3n.<\/span><\/p>\n

Desde Novogreen<\/strong><\/em><\/span> le deseamos todo el \u00e9xito en su desaf\u00edo y os animamos a que os un\u00e1is a su causa<\/span><\/a> y aport\u00e9is vuestro granito de arena.<\/span><\/p>\n

\"defi-mont-blanc\"<\/p>\n

 <\/p>","protected":false},"excerpt":{"rendered":"

Blandine antigua compa\u00f1era en Novogreen\u00c2\u00a0ha decidido participar en un\u00c2\u00a0reto deportivo, la carrera de monta\u00f1a\u00c2\u00a0Ultra Trail du Mont-Blanc,\u00c2\u00a0 en solidaridad con la\u00c2\u00a0Fundaci\u00f3n de las enfermedades raras Despu\u00e9s de hablar con ella y escuchar las poderosas razones que la han llevado a dar este paso, no dudamos un momento en prestarle nuestro apoyo moral y tambi\u00e9n econ\u00f3mico […]<\/p>\n","protected":false},"author":1,"featured_media":5950,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"categories":[22],"tags":[111,112,113,114,23,115,116],"class_list":["post-1710","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-noticias","tag-carrera","tag-crowdfunding","tag-deportes","tag-maraton","tag-novogreen","tag-solidaridad","tag-sponsor"],"acf":[],"yoast_head":"\nBlandine Guepin en la carrera de monta\u00f1a del Mont-Blanc<\/title>\n<meta name=\"description\" content=\"Blandine, antigua compa\u00f1era en Novogreen\u00c2\u00a0particip\u00f3 la carrera de monta\u00f1a\u00c2\u00a0Ultra Trail du Mont-Blanc,\u00c2\u00a0 en solidaridad con la\u00c2\u00a0Fundaci\u00f3n Maladies Rares.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, 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